Black women are more likely to die from breast cancer than White women, according to experts. Advocates and doctors alike point to quality of healthcare as a reason for the disparity. (Photo Credit: Harry Angicla / Unsplash)

By Victoria Mejicanos
AFRO Staff Writer
vmejicanos@afro.com

Every October, the world turns pink for breast cancer awareness month to encourage screening, educate about risk factors and symptoms and show support to those affected by the disease. For some, it is a symbol of hope and encouragement, and for others it is a reminder of how their lives have changed forever.ย 

The AFRO spoke with advocates and health professionals to discuss how Black women can better be supported in their journey fighting breast cancer.ย 

According to the Breast Cancer Research Foundation, โ€œthere is aย  persistent mortality gap between Black women and White womenโ€ when it comes to breast cancer.

Black women are also more likely to experience more aggressive forms of cancer such as triple negative breast cancer, according to Dr. Otis Brawley at Johns Hopkins University.ย 

For Brawley, the disparities tie into quality of care.ย 

Otis Brawley is professor of oncology at Johns Hopkins University School of Medicine. He recently spoke with the AFRO about how disparities change across the nation depending on quality health care access. (Photo courtesy Johns Hopkins University)

โ€œThe death rate for Black women from breast cancer is highly variable around the country,โ€ said Brawley. He explained that depending on where a breast cancer patient lives, it can impact the quality of care they are able to obtain, especially if they are poor.ย ย 

โ€œPoor people end up in systems where they tend to get less than optimal care,โ€ said Brawley. He mentioned several instances where his patients missed chemotherapy appointments because of lack of transportation, childcare and other outstanding costs.ย 

โ€œThe fact that it costs $15 a day to park in the patient parking lot, actually is a huge hindrance,โ€ said Brawley. โ€œThey have insurance that will pay for a $15,000 dose of chemotherapy, but they canโ€™t get it because they canโ€™t afford to pay $15 to park in the parking lot.โ€

Ronda Brunson, a breast cancer survivor turned advocate, is hosting her first Breast Cancer Walk Oct. 4. She shared it will have a military theme to highlight that breast cancer is a fight that many are still battling, and that some do not survive it. (Photo courtesy of Ronda Brunson)

He points to how policy has a role in helping people obtain high quality health care. He explainedย  Massachusetts has a lower death rate than other places in the country, and he pointed to his belief in policies like Romneycare, which was established by Mitt Romney in the late 1990s in the area. Romneycare became the inspiration for the Affordable Care Act, which has helped 45 million Americans.ย 

โ€œItโ€™s absolutely amazing. If you give people high quality health care, they start not dying. Itโ€™s that simple,โ€ said Brawley.

His belief that policy can impact how many women live or die from breast cancer is echoed in the experiences of women like Ronda Brunson, a breast cancer survivor turned advocate.ย 

Brunson was diagnosed after her first mammogram when she turned 40. She had no family history of breast cancer and no health insurance at the time of her diagnosis, paying for treatment out of pocket.ย 

With her organization Tata Tuesdays, Brunson connects women with similar diagnoses to each other so that they can learn about treatment options as well as educate and advocate for each other. She and other advocates in her organization have undergone training and go with women to their doctors appointments as needed.ย 

Her work came out of seeing how different women with the same type of cancer were being treated, in the same state and sometimes even in the same hospital. โ€œWe canโ€™t have a uniform outcome if your doctor is sabotaging your results,โ€ said Brunson. โ€œBecause without that level of communication, we probably will die.โ€ย 

Brunson also challenges what she calls โ€œpink and prettyโ€ culture when it comes to breast cancer awareness campaigns. She said that often, the funds generated from those campaigns donโ€™t reach women in need, or create tangible change for those facing cancer.ย 

ย โ€œI donโ€™t want to discredit research. Research is important,โ€ said Brunson. โ€œ[But] you want to know where your money is going as it relates to research and how it worksโ€ฆnot get caught up in the pink.โ€ย 

Brunson said when she uses pink, itโ€™s used as a tool for recruitment in her organization.ย 

โ€œLetโ€™s create some real change,โ€ she said. โ€œLetโ€™s collect real money that can help real women.โ€ย 

This year Brunson hosted her very first walk on Oct 4. at Lake Montebello Elementary School in Baltimore. The event will include music, vendors, prayer tents, a memorial garden and more.ย 

โ€œWhat I want people to do is move,โ€ said Brunson. โ€œI want them to feel activated. I want to help them unlearn everything they thought they knew in the first place, as it relates to breast cancer. I want people to leave changed.โ€